Monday, 19 January 2009
Little Prince's Latest Assessment
Me and Mr Messy took Little Prince to a specialist Speech and Language Therapy assessment today. This was to assess how he uses and understands speech, rather than how he pronounces words. The assessment was over two hours long and very indepth. Little Prince has a very good vocabulary, she assessed this as being at about an 8 year old level, not bad for a little lad that isn't even 6 until the end of the month :-) However, when doing the assessment activities, if Little Prince found them hard he refused to co-operate, at different points in the session he lay on the chair sucking his thumb, he was distracted by objects in the office, he kicked out and had to be restrained (by me). This and the fact that he didn't seem to care or notice that this was inappropriate behaviour led the therapist to say that he has social and communication difficulties, another word for Autistic Spectrum Disorders. This feels like a kick in the stomach, I don't know why but Autism has always scared me and is something I have never felt I could cope with. Now it seems my precious boy could have this. The therapist said quite bluntly there is no cure, the only thing we can do is to teach him the skills that most children learn instinctively - making eye contact in conversations, taking turns in speaking, listening and responding to others and more stuff that I can't remember. The therapist wants to talk to Little Prince's teacher and will then put all her findings and observations in letters to both his Paediatrician and to us. I've got a meeting with his teacher first thing tomorrow morning, and I'll see what she has to say.
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9 comments:
My dear Janet--I'm so sorry to hear about Little Prince. You must be beside yourself and your head just reeling. This on top of eveything else that's happening in your life. I worked with Autistic children that were institutionalized. back in the 70's early 80's's. Since then thankfully, they don't institutionalize the kids anymore (duh..didn't help the kids at all--the time home on weekends always showed more progress). I have seen a lot lately on the news here in the U.S. about this--it's a rising problem here--as you probably know there are a variety of levels of this--caught early is good...and in some cases he can recover...I don't know if this is case for Little Prince. But I sure hope with all my heart it is. Here is a link to start researching..some of the therapies are with his diet...hmmm..interesting stuff. I sure hope it helps you. You're in my thoughts...hang in there...this little guy is so fortunate he has YOU and not someone else, who might be less able to be there for him.
It's a non-profit foundation set up by a mom with an autistic child, that she was able to bring back from autism...she's a warrior on this thing...I respect the heck out of what she's done and is doing...there is HOPE, don't be discouraged... here's the web address:
http://www.generationrescue.org/
Always Your Friend.
Janet, Did they mention Asperger's. Catherine was diagnosd with a mild form of it back in 1998. It is in the Autism spectrum. She has made such huge strides with her social skills that it is now very hard to reconize that she has it. She is still quite impulsive due to her ADD.It takes a lot of patience and a ton of love to help them succeed.Love Dawn
Oh Janet - big big hugs ((())).
Hope the meeting went OK this morning, am thinking of you.
love WL xxx
PS well done to LP on the great vocab level. and sorry to hear the dossier is still waiting.
Hi Lisa,
Thank you so much for the support, I really need that right now :-) And thank you for the website, I'll have a look at that later when Little Prince is in bed.
Love
Janet
xxx
Hi Dawn,
Yes it was specifically Asperger's they were talking about. It is very encouraging to hear about Catherine and how far she has come, thank you for sharing with me.
Lots of love
Janet
xxx
Hi WL,
Thank you I need all the hugs I can get at the moment :-) The meeting this morning went very well, Little Prince's teacher likes him and really seems to want to do her best for him. We have come up with some strategies for helping him and she is going to talk to the Speech Therapist who conducted the assessment to see if she has any specific ideas on how to help Little Prince. I might not like (or agree) with the ASD/Asperger's idea, but if it helps get Little Prince the help and support he needs it is "just" a label after all, and nothing can change the fact that he is my special little man and that we all adore him :-)
Lots of love
Janet
xxx
Janet, will be thinking of you tomorrow! Please post and let me know how it goes!!
Pen
Hi J
I'm glad the meeting went positively. LP couldn't have a more loving and capable family around him, I know you will do absolutely everything possible to help him reach his full potential. And I agree your little man is totally special!
love WL xxx
Janet,
Big hugs to you and your family. I can only imagine how difficult it is for you to receive this news, but I know how strong you and your family are....together you will get through this.
LP is a wonderful little boy who is loved unconditionally and I know that you will do everything that you can to get him the best care.
I pray with intervention LP will make great strides and improve in all areas.
Let us know if you need anything, even if it's just to talk.
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